IF (International Federation for Spina Bifida and Hydrocephalus ) and Bayer Schering Pharma are planning to launch a second report about the prevention of Neural Tube Defects in 2011.
In this second report we would like to include testimonials from people of all ages with Spina Bifida and/or from their parents, partners or friends.
Many people are familiar with the medical description of Spina Bifida, and words like neural tube defect, congenital malformation, or birth defect. Yet there’s more to your life than "having" Spina Bifida, or for family members or partners and friends to be "care takers".
We would like you to show the world what it actually means to live with Spina Bifida. Tell us what it is that defines you or your relationship. After all, it’s about you !